Let me just say this upfront: I’m not tired. I’m fatigued. And if you don’t know the difference, lucky you. Really.
Right now, I’m writing this from bed. Not in a “cozy Sunday morning with a latte and a little Netflix” kind of way. No. I’m in bed because my body has straight-up refused to participate in today. Multiple Sclerosis fatigue is not just tiredness; it’s full-body betrayal. It’s like your limbs have turned to concrete and your brain is wrapped in molasses and you’re supposed to keep going like everything’s fine. Spoiler: it’s not.
A doctor once explained it like this: if someone without a chronic illness wants to understand what MS fatigue feels like, they’d need to stay awake and upright for three days straight. Then try to function like a normal human. That’s the starting line.
The Daily Tradeoff: Do Something… or Everything Falls Apart
Lately, I’ve been doing too much. And when I push too hard, I pay. The interest rate on energy debt with MS is brutal. I need rest, like, non-negotiable, stop-the-world rest, but life doesn’t exactly come with a nap button.
I wish I were exaggerating when I say I need a midday nap just to function. But who the fuck has time for that? I’m not a toddler in daycare. I’m a woman with a life and deadlines and a cockroach infestation that’s slowly becoming a B-movie horror plot.
Oh Yeah, Let’s Talk About the Bugs
Because apparently fatigue and hunger weren’t enough, I’ve also got roaches. Big ones. The kind that have been around since the dinosaurs and act like they pay rent.
The foundation in my cottage shifted recently, which basically opened the gates of hell and invited every insect in the area to move in. Ants, roaches, you name it, they’re here. It’s a full-on wildlife convention here at Songbird Cottage. And I am not okay with it.
Last night, I was watching M*A*S*H in bed when Big Pappa Roach decided to take a stroll across my floor. Bugsy took one look, shrugged, and went back to sleep. Thanks for nothing, bro.
Love, Lattes, and Losing It
What I want more than anything right now is for my boyfriend to walk in with a cappuccino in one hand, that warm smile of his on his face, and just hold me for a minute. That kind of hug that smells like roasted coffee and promises you’re not in this alone. But no, he’s at work. And life doesn’t pause for nobody.
So I’ll get up. Slowly. I’ll do what I can. I’ll fight the roach war and do some cleaning. Bugsy will freak out over the mop and attack it. And honestly? I might give up halfway through and let him battle it while I lie back down. He’ll be proud of himself for protecting us, which will give his self-esteem a great boost.
Because this is the reality: MS fatigue isn’t lazy. It’s not optional. It’s not something you can just push through with a good attitude and positive vibes.
But still, I keep going, I try. Because I want to live. I want fruit. I want a clean house. I will not give up and I will conquer this world, one little itty bitty step at a time. And some days, just wanting is enough to get me moving. Kind of.
What about you? Ever felt like your body staged a coup and forgot to notify your plans?
Rest Like a Rebel: Why the Soft Life Still Feels So Damn Hard
Let’s talk about something no one warns you about when you start unlearning hustle culture: rest guilt.
Even now, after years of therapy and self-work, rest still makes me feel like I’m doing something wrong.
I’ll be lying down—genuinely exhausted—and my brain will whisper that old poison: You should be working. You’re wasting time. You’re falling behind.
It’s not just internal. It’s cultural. We live in a world that worships busyness and treats slowing down like a character flaw. Choosing the soft life? That’s practically a subversive act.
I used to think rest was something you had to earn
Back when I was still trying to prove I was “normal” enough to keep up with a productivity-obsessed world, I saw rest as a luxury. A reward. Something you got after you did everything else: cleared the inbox, made dinner, replied to every text, pushed through every signal your body was sending.
But here’s the thing: the list never ends. The emails don’t stop. And if you live with chronic pain, burnout, trauma, neurodivergence, or literally any human vulnerability, waiting until it’s all done means you’ll never, ever rest.
The soft life; this idea of living gently, of choosing rest and slowness over grind and self-abandonment, isn’t something I just “have.” It’s something I have to actively choose. Every single day.
Some days I choose softness. Some days I don’t.
Some days, I override every signal my body sends. I hustle. I numb out. I spiral. The voice of internalised capitalism tells me I’m lazy, and I believe it.
But on the days I do choose rest?
It changes everything; not in some dramatic, movie-montage kind of way, but in small, sacred shifts.
Like:
Letting myself wake up without rushing or doomscrolling.
Drinking tea without multitasking.
Crying in the bath without apologising to myself.
Watching something light and letting that joy be enough.
These aren’t indulgences. They’re survival. They’re the daily rituals of someone trying to live outside the grind. Someone practising rest as resistance.
Softness isn’t weakness. It’s power in a quieter voice.
We don’t talk enough about how hard it is to choose the soft life in a culture built on overwork. It’s easier to stay busy than to feel. Easier to push through than to sit with what’s underneath.
But every time you choose rest, even when it feels wrong, you’re undoing a little piece of the lie that says your worth is in your output.
You’re reclaiming your humanity.
Maybe the real revolution isn’t about never feeling rest guilt. Maybe it’s about doing it anyway. Choosing softness. Slowing down. Giving yourself care without a justification.
The world doesn’t need more burned-out people who’ve forgotten how to breathe.
It needs people who’ve come home to themselves.
People who say no without a paragraph of explanation.
People who laugh, and cry, and rest, and rage; and don’t apologise for any of it.
Still feel guilty for resting? Yeah. Me too.
You’re not alone. You’re not lazy. You’re just unlearning a system that never had your best interest at heart.
Want to explore this more? Drop a comment below and tell me: What’s your relationship with rest right now? Let’s talk about it. Let’s make softness a conversation, not a secret.
It’s strange how quiet a house gets when one little creature isn’t in it.
My dog, Bugsy, is at my Mum’s this weekend. He’s being absolutely spoiled, no doubt about that. She’s probably made him scrambled eggs and is reading him bedtime stories while feeding him snacks off a Royal Doulton plate. He’s living the high life. I know he’s happy. I know she adores having him. And he loves her too.
But the truth? I miss him like hell.
It’s only the second time we’ve been apart since I adopted him a year ago, and I feel a bit like I’ve misplaced a piece of my heart. I keep expecting to hear the jingle of his collar or feel his weight settle next to me on the bed. My eyes keep flicking toward the door like he’s about to burst through it at any second. But he won’t. Not till Sunday.
I miss his presence. His energy. His ridiculous snoring. He’s my baby. My child. My constant.
And yet, there’s something really beautiful about this too.
Letting go, even just for a weekend, is a practice. It’s a reminder that love doesn’t vanish just because someone’s not physically there. It’s about trust. About knowing that connections hold, even when they stretch.
Sometimes we hold on tight because we’re scared. Of change. Of distance. Of losing the very things that give us joy.
But love, real love, doesn’t fall apart when you give it space. It deepens.
I like that I can give Bugsy this time with someone who loves him. That I can share his joy. That I don’t need to control every moment to feel connected. And even though I miss him, I know we’ll both be better for it.
The silence is loud without him. But it’s not empty.
There are days my body feels like a battlefield. Days when getting out of bed is a full-contact sport. Days when nothing fits right, nothing looks right, and my reflection feels like it belongs to someone else — someone heavier, sicker, older, and more broken than the version of myself I still carry around in my head.
If you know that feeling — that deep, gut-punch disconnect between who you are and what you see — then you already know: Body positivity isn’t always about love. Sometimes, it’s just about survival.
Body respect: the version of self-love that doesn’t require a mood ring
For most of my life, I thought body positivity meant waking up every morning, throwing on a bikini, and twirling in front of a mirror, shouting, “I’m a goddess!” (Newsflash: That’s not reality. That’s an Instagram ad.)
When you’re living with chronic illness, disability, trauma, aging, or just…being a human being in an unpredictable body — forcing yourself to “love” everything all the time is another impossible standard. Another stick to beat yourself with.
So I stopped chasing love. I started chasing respect instead.
Feeding my body even when I’m mad at it.
Stretching gently, even when it feels stiff and foreign.
Dressing in clothes that fit me, not the me I “should” be.
Taking rest seriously, not as a guilty secret, but as a freaking necessity.
Speaking to myself like I would to a dear friend who’s fighting hard to stay alive.
It’s not glamorous. It’s not always photogenic. It’s real healing.
The world profits off our self-hate. I’m opting out.
The wellness industry, the beauty industry, even the so-called “body positivity” movement sometimes, they all whisper the same garbage: “If you just try harder, spend more, punish yourself longer — you’ll finally be good enough.”
You know what? I’m tired. And I’m not buying it anymore.
This body — right now, as it is, on its best day and its worst — is good enough. Not because it looks a certain way. Not because it performs a certain way. But because it’s mine. Because it carries me through all of it: the heartbreaks, the flare-ups, the ordinary Tuesdays, and the small, stubborn joys.
That’s worth respecting.
How I endeavour to practice body respect (even when I don’t feel like it)
Here’s what it looks like on a normal, messy Tuesday:
I move when I can, how I can. Sometimes it’s yoga. Sometimes it’s hobbling to the couch. Both are valid.
I feed myself like I deserve nourishment. No punishing diets. No apology meals.
I rest without guilt. Productivity culture can kiss my very tired, very worthy ass.
I set boundaries with media. If my feed makes me hate my body, I unfollow, block, delete, walk away.
I celebrate functionality over appearance. This body digests food. It hugs my people. It lets me laugh until I snort. That matters more than what it looks like.
I’m not aiming for perfect self-love. I’m aiming for loyalty. I’m aiming for partnership. I’m aiming for showing up for myself, even on the days I don’t feel lovable.
Because guess what? Respect doesn’t wait for perfection.
You deserve that too.
You don’t have to earn your own compassion. You don’t have to be “fixed” before you’re allowed to care for yourself.
If you’re breathing, you’re worthy. If you’re fighting, you’re worthy. If you’re just surviving today, you are already doing something extraordinary.
Let’s stop waiting until we feel like we “deserve” to treat ourselves kindly. Let’s just decide — right now — that we do.
No one tells you how exhausting it is to be polite about being chronically ill.
No one warns you that one of the hardest parts won’t be the symptoms — it’ll be the explaining, the justifying, the pretending-you’re-fine smile you glue to your face at doctor’s offices, family dinners, and the school gate.
Living with chronic illness doesn’t look like a movie montage. It looks like the same unwashed hair three days in a row. It looks like forgetting words mid-sentence. It looks like cancelling — again — and hating yourself for it.
That Chronic Fatigue? It’s Not Tired. It’s Poisoned.
Chronic fatigue isn’t just being tired. It’s body-in-concrete exhaustion that makes brushing your teeth feel like a marathon. It’s lying in bed hurting from doing nothing. And still, you explain it like you’re “just run down” because people don’t understand what this kind of fatigue actually is. Experts say that for the average person to understand what chronic fatigue feels like, they would need to stay awake for three days straight and then attempt to continue with life as though nothing is wrong.
You Become an Expert at Smiling Through Chronic Pain
You learn to say “I’m fine” while your joints are on fire and your head feels like it’s splitting in two. Because being visibly sick makes people uncomfortable. So, like many living with an invisible illness, you become a master at hiding your truth.
You Feel Guilty All the Time
Guilty for being ill. Guilty for cancelling. Guilty for being “negative.” Guilt becomes your shadow — especially in a world that expects constant productivity. And chronic illness doesn’t come with sick leave for your emotions. It certainly doesn’t give you sick leave for being sick.
You Lose Friends — and You Blame Yourself
Some people slowly drift when you stop being “fun.” Others disappear completely the moment you need support. You start to wonder if you’re just too much — when really, they just weren’t equipped to stay.
Your Body Becomes a Full-Time Job
Living with chronic illness means appointments, test results, meds, insurance, symptom tracking. You become your own medical manager. And half the time, doctors still shrug and say, “We don’t really know.” Ironically, chronically ill people develop skills that could run circles around the top CEOs; we just don’t have the bodies to be able to do the job.
You Start to Doubt Yourself
When your labs come back “normal,” when a doctor dismisses your symptoms, when people say “but you look great” — you begin to gaslight yourself. You wonder if it’s all in your head. This is the quiet cruelty of misunderstood chronic illness.
You Become Fierce in Ways You Never Expected
You stop people-pleasing. Believe me. This is one of the first changes you’ll experience. You learn how to say no, how to rest, how to speak up. Your survival depends on this. Chronic illness teaches you how to be soft and strong — even on the days you’re barely holding it together.
You’re Not Weak — You’re Living a Life Most People Couldn’t Handle
Being chronically ill every day is hard. It’s unseen, often misunderstood, and deeply personal. But you’re not alone. There’s nothing wrong with you. And you are more than your diagnosis.
You’re just learning how to carry the weight of your reality — and that’s a strength no one talks about enough.
