Multiple Sclerosis and Self-Love

Multiple Sclerosis and Self-Love

Written by -N. Collins, RN

A journey of learning to embrace life with compassion and care for myself.

When I was diagnosed with multiple sclerosis (MS) in January of 2023, my focus was anything but myself. Providing for my household, caring for my children, caring for my patients (I’m a Registered Nurse), and securing a home for my disabled mom were a few of my top priorities. I had no real concept of self-love. I refused to accept the diagnosis for a full year, trying to live life as I always had. This was until one day, as I struggled to climb the stairs at work after a 12-hour shift, it dawned on me that I was fighting my very own body instead of working with my body to fight MS. I had to learn to love myself enough to set boundaries and care for my vessel as much as I did others.

Self-love involves accepting yourself fully, treating yourself with kindness, and prioritizing your own well-being. For those of us with a diagnosis of MS, practicing self-love is essential in coping with the physical and emotional challenges provoked by MS. Here are a few ways I practice self-love.

1. Cultivating a Positive Mindset

Living with MS can be overwhelming, but adopting a positive mindset can help navigate the journey with resilience and hope. Embracing self-love encourages a shift in focus from limitations to possibilities, fostering a sense of empowerment and optimism.

2. Managing Stress Effectively

Stress can exacerbate MS symptoms, making it crucial to develop healthy coping mechanisms. Self-love practices such as mindfulness, meditation, and deep breathing can reduce stress levels, promoting relaxation and calmness.

3. Prioritizing Physical Health

Self-love involves taking proactive steps to maintain physical health. Regular exercise, a balanced diet, and adequate rest are vital components of managing MS. Listening to my body and responding to its needs with compassion was most difficult but lead to improved overall well-being.

4. Nurturing Emotional Well-Being

MS can take an emotional toll, leading to feelings of frustration, anger, sadness, depression, and anxiety. Self-love encourages individuals to acknowledge and honor their emotions without judgment. I went through the entire grieving process before embarking on my journey to self-love.

5. Setting Realistic Goals

Self-love involves setting realistic and achievable goals that align with our individual abilities and circumstances. Celebrating small victories and progress creates a sense of accomplishment and motivation, contributing to a positive outlook on life.

6. Practicing Self-Care

Self-care is a fundamental aspect of self-love. Engaging in activities that bring joy, relaxation, and fulfilment can enhance mental and emotional health. I like to do activities in my garden, such as yoga, reading, and meditation. I’ve also become more in tune with nature, taking more walks and appreciating its beauty. Listening to music, dancing, and indulging in self-care nurture the soul and promote balance.

Living with multiple sclerosis is undoubtedly challenging, but the practice of self-love offers a powerful tool for navigating our journeys with grace and resilience. By embracing self-love, I have a sense of empowerment, hope, and well-being, transforming my experience into one of growth and self-discovery.


Hi, I’m Nicole. I’m a mom to 3 and registered nurse by profession. I was diagnosed with multiple sclerosis in January of 2023 after a case of optic neuritis, which led to vision loss in my left eye. I recall experiencing symptoms of MS as early as 2016. I now use my knowledge as a RN as well as my experiences as a MS Warrior to educate, uplift, and bring awareness to the “rare” autoimmune disease known as Multiple Sclerosis.


When a Lupus Flare Lit My Creative Fire

When a Lupus Flare Lit My Creative Fire

Jonas, 32, Dublin

I was halfway through my master’s in architecture, you know, living on coffee and blind optimism, when the rheumatologist slapped the words “systemic lupus erythematosus” on my file. Cheers, doc. Overnight my wrists puffed up like angry balloons, and every drafting pen felt heavier than a pint of Guinness. Lecturers talked about taking time off, friends offered the usual “sure everything happens for a reason” guff. I nearly believed my career was headed for the bin.

Then one grim November night, rain lashing the windows, fever spiking so hard I was talking shite to the ceiling, I saw the shadows on the plaster twist into mad, gothic cathedrals. Proper haunted-house stuff. Half-delirious, I grabbed a sketchbook and scribbled the shapes: crooked arches, spiral staircases that went nowhere, angles that would give my old geometry teacher a heart attack. The pain blurred my lines, but it also kicked perfectionism out the door.

Weeks of bed rest turned into the best studio I never asked for. Between hot-water-bottle shifts and Netflix binges, I filled page after page with structures that bent, curved and tilted like bodies that refuse to behave. By the time I limped back to campus, I had a portfolio full of buildings that could actually cradle people with dodgy joints, light sensitivity, all that craic. My professors were gobsmacked, they called the work radical.

Fast-forward to now: clients hunt me down for offices with nooks to stretch stiff backs, galleries with railings you want to hug, studios lit so migraine brains don’t feel like they’re in a nightclub. Lupus still barges in uninvited, some mornings I’m drafting from bed, stylus propped against a feck-off stack of pillows, but it’s taught me architecture isn’t about rigid grids; it’s about sheltering messy, miraculous humans.

Yeah, illness nicks plenty, but it also leaves breadcrumbs to new ideas. Every dawn, joints creaking like old floorboards, I glance at those ceiling shadows and think: grand, let’s build something weird and kind today.

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