This morning, before I’d even opened my eyes, I knew. Not from a calendar reminder or a “you’re due for a flare-up” ping. Just the weight of my own body. Heavy. Cement-heavy. Fire-in-my-veins heavy.
Welcome to the delightful surprise party that is chronic illness. No RSVP needed. You just… wake up in it.
The Flare Days You Don’t See Coming
Some flares sneak up on me. Others kick the door down and announce themselves with full-body spasticity, shooting nerve shocks, and hands that feel like they’ve been beaten with hammers. Today it’s the latter.
My feet and calves are twitching like live wires, and my hands are stiff, aching, and protesting even this act of typing. Vision? Blurry. Pain? Electrical. Plans? Cancelled.
And here’s the kicker: I used to ignore this. I’d push through. Slam a Red Bull, down some coffee, and throw myself into work like I was invincible.
Spoiler: I’m not.
Before Chronic Illness, “Rest” Was an Afterthought
Rest used to mean feeling guilty. Lazy. Weak. I grew up in a culture of “hustle harder” and “push through the pain.” Rest was what you earned once everything else was done, except everything else was never done.
So I’d rest, sure. For twenty minutes. While scrolling. Or I’d lie in bed with my laptop, answering emails like a good little burnout-junkie.
Turns out, that’s not rest. That’s just horizontal productivity.
Now? Rest Is a Ritual
Rest is no longer a break; it’s a boundary. It’s a ceremony.
The bed is made, properly made. Soft, high-quality linen. No scratchy textures. My skin is too sensitive, and my nervous system too fried, for anything but comfort.
Sounds of nature fill the room. Crickets. Forests. Sometimes just silence, blessed and still.
Lavender floats through the air, either from a candle or a diffuser, because my brain needs cues that it’s safe to exhale.
Baths with Epsom salts when I can manage it. Lavender-infused again. Heat is magic. Fun fact: so is Lavender.
And always, always tea. Sometimes a fancy store-bought herbal one, sometimes a wild little blend of whatever’s in the fridge: fresh ginger, honey, lemon, mint, berries. I long for a proper teapot with a built-in infuser. I’ll get it one day, fingers crossed.
There was a moment, a real one, when I realised: rest is not a luxury. It’s not a nap. It’s not working from bed. It’s not multitasking with a heating pad on.
Rest is permission. Permission to shut off. To stop proving yourself. To not be available to everyone all the time.
I finally saw what my body was begging me for: clear boundaries. Not “I’ll just do this one last thing.” Not “It’s fine, I can take that call.” But a full switch-off, emotionally, physically, and mentally.
Friday to Monday. No clients. No guilt.
Just… recovery.
If My Body Could Speak…
It would say:
“You call this rest?! Give me real rest or I’ll force it out of you.”
And honestly? Fair.
Because my body has forced it out of me before. Through flares. Through burnout. Through collapse.
Rest Isn’t Weakness, It’s Wisdom
If you’re living with chronic illness, or even just carrying too much life in your bones, you don’t need permission to rest. But I’ll give it anyway:
Let your rest be lush. Let it be soft. Let it be sacred. Let it be enough.
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If this post helped you feel seen or reminded you to rest, consider buying me a tea. It helps support my work, and keeps this blog alive and well (even when I’m not).
It’s 2:47 a.m. and I’m scrolling through Instagram, watching strangers toast champagne in Santorini, cuddle golden retrievers, and post “raw” captions that somehow still feel filtered. I’m not sad, exactly. But I’m not okay, either. I’m lonely. And I know I’m not alone in that.
In a world where we can FaceTime across oceans and “like” a hundred photos before breakfast, why do so many of us feel so disconnected? The answer is messy, layered, and deeply human if we’re brave enough to look.
The Digital Age: More Screens, Fewer Souls
We were promised connection. Instead, we got curated highlight reels and dopamine loops. A 2025 Baylor University study found that both passive scrolling and active posting on social media were linked to increased feelings of loneliness over time. Even when we’re engaging, we’re often left feeling emptier than before.
It’s not just the quantity of our interactions that’s changed, it’s the quality. We’ve traded deep conversations for comment threads, shared silences for typing indicators. And in doing so, we’ve lost something vital.
The Health Toll: Loneliness as a Silent Epidemic
Loneliness isn’t just a feeling; it’s a health crisis. The U.S. Surgeon General has equated the health risks of chronic loneliness to smoking 15 cigarettes a day. It increases the risk of heart disease, stroke, dementia, and premature death.
Mental health suffers, too. Lonely individuals are more prone to depression, anxiety, and suicidal ideation. The emotional pain of isolation can be as real and as damaging as physical pain.
The Vicious Cycle: Social Media and Loneliness
It’s a cruel irony: we turn to social media to feel connected, but it often leaves us feeling more isolated. A longitudinal study among Chinese college students found a bidirectional relationship between loneliness and problematic social media use—each feeding into the other over time.
The more we scroll, the lonelier we feel. And the lonelier we feel, the more we scroll. Breaking this cycle requires conscious effort and, often, a reevaluation of our digital habits.
The Generational Divide: Gen Z and the Loneliness Surge
Gen Z, the first generation to grow up entirely in the digital age, is experiencing unprecedented levels of loneliness. A 2025 report revealed that one in four young Australians reports loneliness as a daily stressor. Social media, while offering avenues for connection, often exacerbates feelings of isolation among youth.
The constant exposure to others’ curated lives can lead to feelings of inadequacy and exclusion, further deepening the chasm of loneliness.
The Illusion of AI Companionship
In an attempt to address the loneliness epidemic, tech leaders like Mark Zuckerberg have proposed AI companions as a solution. While AI can offer temporary comfort, it cannot replace the depth and complexity of human relationships. Overreliance on AI risks diminishing the value of genuine human interaction and may lead society to neglect essential social infrastructure.
True connection requires vulnerability, empathy, and shared experiences—qualities that AI, no matter how advanced, cannot authentically replicate.
Reclaiming Connection: Steps Toward Healing
Addressing loneliness in the digital age requires intentional action:
Digital Detox: Set boundaries for screen time. Designate tech-free zones and times to foster real-world interactions.
Community Engagement: Participate in local events, volunteer, or join clubs to build meaningful relationships.
Mindful Technology Use: Use social media intentionally. Engage in content that uplifts and connects rather than isolates.
Seek Support: If loneliness becomes overwhelming, reach out to mental health professionals or support groups.
By taking these steps, we can begin to rebuild the social fabric that technology has, in some ways, unraveled.
A Personal Reflection
I remember a time when I felt truly connected—not through likes or comments, but through shared laughter and unfiltered conversations. It was messy, imperfect, and real. In our pursuit of digital perfection, we’ve lost sight of the beauty in imperfection.
Let’s choose to be present. To look up from our screens and into each other’s eyes. To embrace the awkward silences and the unfiltered moments. Because in those spaces, true connection thrives.
I was halfway through my master’s in architecture, you know, living on coffee and blind optimism, when the rheumatologist slapped the words “systemic lupus erythematosus” on my file. Cheers, doc. Overnight my wrists puffed up like angry balloons, and every drafting pen felt heavier than a pint of Guinness. Lecturers talked about taking time off, friends offered the usual “sure everything happens for a reason” guff. I nearly believed my career was headed for the bin.
Then one grim November night, rain lashing the windows, fever spiking so hard I was talking shite to the ceiling, I saw the shadows on the plaster twist into mad, gothic cathedrals. Proper haunted-house stuff. Half-delirious, I grabbed a sketchbook and scribbled the shapes: crooked arches, spiral staircases that went nowhere, angles that would give my old geometry teacher a heart attack. The pain blurred my lines, but it also kicked perfectionism out the door.
Weeks of bed rest turned into the best studio I never asked for. Between hot-water-bottle shifts and Netflix binges, I filled page after page with structures that bent, curved and tilted like bodies that refuse to behave. By the time I limped back to campus, I had a portfolio full of buildings that could actually cradle people with dodgy joints, light sensitivity, all that craic. My professors were gobsmacked, they called the work radical.
Fast-forward to now: clients hunt me down for offices with nooks to stretch stiff backs, galleries with railings you want to hug, studios lit so migraine brains don’t feel like they’re in a nightclub. Lupus still barges in uninvited, some mornings I’m drafting from bed, stylus propped against a feck-off stack of pillows, but it’s taught me architecture isn’t about rigid grids; it’s about sheltering messy, miraculous humans.
Yeah, illness nicks plenty, but it also leaves breadcrumbs to new ideas. Every dawn, joints creaking like old floorboards, I glance at those ceiling shadows and think: grand, let’s build something weird and kind today.
If you have a story to tell or a question for the team, email us at hello@kateandginger.com
A few nights ago, I dreamt my best friend stole my boyfriend—and to add insult to injury, everyone was mad at me for not being happy for them. Excuse me?? In what universe is that a reasonable emotional response? Apparently, in Dreamland, I’m the villain for having feelings. Love that for me.
Then last night I dreamt I was pregnant. I’m 48. My ovaries audibly laughed when I woke up. But in the dream, I was wearing my boyfriend’s graphic tees, proudly showing off my bump like some Pinterest-worthy mum-to-be. The subconscious is wild.
In real life, I’ve been having weird, sweat-inducing, doubled-over-in-agony pelvic pains and suspect it’s time to say goodbye to the IUD that’s been living rent-free in my uterus for a while now. I’ve been dreading having it removed. Not quite as bad as having it inserted, but still—hello!!! A little anaesthesia wouldn’t hurt.
I mentioned this to my Mother, and, bless her, she warned me to be careful I don’t fall pregnant. At 48… with cyst-infested ovaries? It would be an act of the divine. (SFX: angels singing)
Still, the dream left a strange warmth behind. I don’t have children—I couldn’t (unless you count the four-legged, fur-covered kind)—but that dream baby felt oddly real. Maybe it’s just hormones. Or gas. Or the fact that I became an aunt again recently, and my new niece is absolute perfection. I’d love to be more present in my nieces’ and nephews’ lives, but I live on the other side of the world. I suppose that makes me a digital aunty. A pixelated presence with a Wi-Fi connection and a whole lot of love.
It’s weird. And a little sad. Call me old-fashioned, but I want to hug the people I love. Not just double-tap their faces on a screen.
Speaking of hugs—Bugsy (my dog) prefers his affection delivered in flying leaps and enthusiastic face-licks. Not exactly subtle, but I get the message. Imagine if humans did that. Note to self: Get some tea tree face wash.
So yes, last weekend we stayed up talking till 3 am, laughing like teenagers, like there wasn’t a chronic illness or middle age looming in the background. Was it irresponsible? Definitely. Was it worth it? Absolutely. Sometimes, connection matters more than rest. (MS doesn’t care about my emotional growth. It wants naps. Now.) Still, sometimes the pain is worth the priceless joy of two souls connecting.
Which brings me to today: I am completely out of spoons. No cutlery left in the drawer. My battery is flat, my tank’s empty, the engine won’t even turn over. I had another one of those weird spells yesterday where I just… shut down. One minute I was upright, the next I was horizontal and unconscious—like a phone that forgot to warn you it’s on 1%. It’s happening more often. Still trying to figure out what it is.
I made a beautiful lunch disguised as breakfast. (Don’t come for me, I don’t eat before 11 am unless bribed.) Toasted seed loaf, smashed avo, egg, spinach, feta, and edible flowers—because I’m clearly in my edible flower era. They make the plate look happy. And honestly, if your food can’t spark a little joy, what even is the point?
Anyway, I’m rambling. That’s what happens when you’re sleep-deprived and slightly hormonal with a head full of dreams and a body full of meh. Someone, please bring me coffee. Or a hug. Or maybe just a soft place to nap where no one expects anything from me for at least 12 hours.
Here’s something I wish someone had handed me like a glass of cold water in the middle of a body-image meltdown: talking about weight doesn’t have to be an act of war against yourself.
But for a lot of us? It is. Or it has been. Or it’s still whispering in the background every time we say we’re “body neutral” but silently pull our shirt down before we sit.
This is the first in a series I never thought I’d write. Not because I don’t think about weight; I do, more than I want to admit, but because this conversation comes loaded with shame, confusion, and about twelve inner critics screaming at once. It should come with a trigger warning and a therapist on call.
But avoiding it hasn’t made it go away. It’s just made it lonelier. So yeah, we’re talking about it. Honestly. No thigh-gap propaganda. No smoothie cleanses. No shame spirals. Just truth, complexity, and a serious side-eye at diet culture.
Why talk about weight at all?
Because weight is never just a number. It’s a story. Or more like a thousand stories:
That time a doctor talked to you like your BMI was a personality flaw.
The jeans you swore you’d “earn” back.
The compliment that felt like a warning.
The breakup you blamed on your thighs.
The silent math you did before every meal.
Weight is memory. It’s grief. It’s every time someone taught us, explicitly or not, that our value had a dress size.
But also? It’s embodiment. Your body carries you through life. Through joy and loss and orgasms and hangovers. Through parenting, periods, dancing, surgery, and grief. It deserves care. But the way we’ve been taught to care for it? Mostly bullshit.
The emotional landmine of the word “diet”
Say it with me: diet.
Did your shoulders tense up? Mine did. It’s a word soaked in guilt, rebellion, hunger, and spreadsheets of sins. For many of us, “diet” means war; against our bodies, our cravings, and our sanity.
And now we’ve just rebranded it: “wellness,” “clean eating,” “biohacking.” Same control, different font.
But what if food wasn’t punishment? What if hunger wasn’t a moral failing? What if eating wasn’t something we had to earn?
This is where body trust comes in. It’s radical. It’s messy. And it starts with unlearning the idea that your body is a wild animal that needs to be tamed.
Respect > Restriction
I’m not here to sell you weight loss. I’m here to talk about body respect.
That might include weight loss. Or not. It might mean more movement. More rest. Less people-pleasing. More carbs.
It might mean feeding yourself like someone who matters.
Because weight loss, if it happens, should be a side effect of listening, not loathing. Not fixing. Not performing.
This isn’t about control. It’s about connection. It’s about neutrality over perfection. It’s about the kind of love that isn’t conditional.
Your body isn’t an algorithm
Your body doesn’t speak in macros or TikTok challenges. It doesn’t care what your fitness tracker says. It communicates in much quieter ways:
The ache in your shoulders after a day of pretending.
The craving for something warm when the world feels cold.
The anxiety that flares when you skip meals in the name of discipline.
The tears you swallow when you catch your reflection and feel like you failed.
This body? It’s not broken. It’s talking. Are you listening?
Because the minute you stop outsourcing your cues to apps, influencers, and medical charts, you remember something: you already know.
What you need isn’t another damn plan. You need presence. You need compassion. You need to stop treating your body like a battlefield.
So yeah. Let’s talk about weight.
Let’s drag it out of the shadows. Let’s unpack it. Let’s get messy and curious and kind. No “before and after.” Just the middle. Just this moment. Just you, as is.
What does body respect look like for you right now? Drop it in the comments. We’re building something here.
