Life lately? Bit of a circus, honestly. The kind where you’re both the juggler and the flaming hoops. I’ve been playing defence (is that the right phrase? I’m South African, so I dunno, insert a rugby version here). Point is, it’s been A Lot™.
Work has slowed down to a crawl. Thank you, AI overlords. Thank you, Canva. Thank you, Wix. Apparently, if you can drag and drop a rectangle onto a screen, you no longer need two decades of actual design experience. I’m thrilled.
And here’s the thing: I’ve hit that midlife shift, the one no one warns you about, where you just stop caring about being impressive or polished or “professional.” I’m tired of being the safe, dependable designer who always colours inside the lines (and yes, I’m still good at it and will obviously continue to do it, but something in me is itching for more). I want to smash some rules. I want to do some design that bites. I want to make something so bold it makes a marketing exec spill their Triple-Foamed Almond-Oat-Cashew-Matcha-Chai-Latte™ or whatever the latest Plant-Based Personality Beverage™ is trending right now. I want to shred the PowerPoint and play the guitar solo that ends with me setting the stage on fire.
Physically, I’m okay if “okay” means cocooned under 6 blankets, trying to weigh up the pros and cons of getting up to pee. The bathroom is approximately the temperature of Neptune. I am seriously contemplating whether a SheWee is a worthwhile winter investment. If anyone wants to sponsor one, I’ll write a full review, just saying.
In other news, Bugsy recently found and swallowed what can only be described as a decomposing pelt from the Upside Down Pet Buffet. I couldn’t stop him, because, well, MS. Now he’s groaning and on kibble lockdown. He’ll do it again. We both know it.
Other recent obsessions include: – Nutritional yeast (I don’t even know who I am anymore, but this stuff is gooooood). – Cinnamon. In everything. I’m basically a sentient chai. – The fantasy of watching trash TV with a giant mug of lactose-free, sugar-free hot choc and zero obligations.
On the “doing things because I have to, not because I want to” list: • Looking for work • Doing work • Starting 7 side hustles because bills • Also, doing dishes (or rather, avoiding them entirely)
My soul? Currently on a hunger strike. All it wants is to make weird, beautiful things: paint, write, doodle, sing to plants, get lost in a good audiobook (if I could actually find one narrated by someone who doesn’t sound like a robot or a smug yoga teacher).
Also, if my body could leave me a Post-it note, it would say: “I’m in spasm. I’m twitching like a haunted doll. Please sort this out.”
A few other thoughts, while we’re here: I’ve irrationally decided that my long, tangled hair is now my entire identity and also the enemy and needs the chop.
My autobiography title this week is How I Turned Into a Pot Plant and Suffered My Own Neglect.
Speaking of plants, I watered two of them recently, and they’re thriving. Who knew that water helps? Revolutionary.
That’s where I’m at. Tired. Unapologetically salty. Creatively starved. But weirdly hopeful that something good will take root if I just keep showing up. Maybe a little scrappy. Maybe not polished. But real.
Let’s see what grows.
— Kate
Bugsy says he won’t eat anything dead and unidentifiable this week… if you buy us a coffee: buymeacoffee.com/kateandginger
This weeks’s productivity level: 2/10 , but my plants are alive, so.
Mood-Support Beverage™ of the Week:Existential Crampuccino™, spicy, bitter, best served in bed.
Unsolicited Product Endorsement:This entry is not sponsored by SheWee™, but it should be.
Bugsy’s Digestive Adventures™: This week’s highlight: decomposing pelt from the Upside Down™ Pet Buffet.
Bugsy says he won’t eat anything dead and unidentifiable next week… if you buy us a coffee: buymeacoffee.com/kateandginger
On chilly mornings, warm beds, and the slow joy of being with someone you’ve missed.
There’s a particular kind of comfort that comes with waking up in the middle of the night and feeling your partner asleep next to you. When it’s cold out, and they’re warm, and for just a moment everything feels safe and still. Bugsy snuggled in his bed, the hush of autumn just beyond the window, and his hand finding mine under the covers. It’s not dramatic, but it is everything.
Last night we went to visit friends for a drink. We sat around, the four of us, listening to Joe Cocker’s Woodstock performance of With a Little Help From My Friends, drinking wine, and laughing until our bellies ached. It was the kind of night that fills your cup in ways you didn’t know it was empty.
When we got home, Bugsy was over the moon to see us. We stayed up until after 2 am, just talking and laughing, savouring the feeling of being together again. I was supposed to be back here a week ago, but broken-down cars and a relentless list of responsibilities kept pushing the date out. Life happened, as it does. But man, was it good to come back.
We call this my home too now, because home is where the heart is. And he has my heart.
This weekend, we’re letting ourselves unwind. We have plans to visit a local bazaar; right now, we’re cooking meals, watching movies, and diving into a feast of sports, rugby, Roland Garros tennis, and Formula 1. It’s the kind of cosy weekend routine that makes space for recovery. Bugsy is fast asleep next to the French doors, curled up in his bed, the green garden just beyond.
Outside, it’s chilly, grey, and beautifully quiet. Inside, it’s all warmth and rest. It feels like a much-needed pause, a gentle return to ourselves. A little slice of emotional burnout recovery in real time.
I learned the hard way that working 18-hour days, six days a week, will break you in more ways than just physically. Burnout isn’t a badge of honour. Downtime isn’t optional. It’s vital for your well-being and your soul.
So if you’re reading this and running on empty, I hope you give yourself the gift of slowing down. Let yourself rest. Let yourself be held. Let yourself remember what it feels like to come home, to your body, to your breath, and to the people who love you. This season, let reconnection be your ritual.
It feels like fire in my veins. That kind of pain. The pain that makes you shake not from fear but from sheer bodily revolt. Electric shocks snap through me like I’ve been rigged up to a sadistic little taser and someone’s got a trigger-happy finger. It’s Tuesday morning, and I’m trying to hold back tears while typing this, because even typing feels like a bloody expedition.
This latest MS flare kicked off just after midnight Sunday, that weird, ghostly hour when the world is silent and your body chooses to riot. My fingers are stiff; they don’t want to move. My thoughts are flickering—like a dodgy lightbulb in a horror film.
And then it rains.
Bugsy, The Windscreen Wiper Assassin
The irony is thick: the one day I am at my most broken, the sky follows suit. Not a gentle drizzle. No, today it’s an angry, theatrical downpour. Bugsy—my ride-or-die, neurotic rescue dog—decides the windscreen wipers are obviously murderers. Every time they swipe, he lunges at the dashboard like he’s in a high-stakes action film and sinks his teeth into the once-beautiful leather seats. We have to head back to our town today. When I’ve managed to gather the strength or energy, we’ll hit the winding farm roads, half-swallowed by floods. Note to self: get life jackets to keep in car. My hands will barely grip the steering wheel, thank fuck for power steering, and my muscles will spasm with each bump in the road. And this is Africa, we have nothing but bumps in the road.
In Afrikaans, we have a saying, “ek voel vere.” It literally means, “I feel feathers,” but what it actually translates to is: I don’t give a damn. Today, I voel vere for everything outside this pain. Bills, emails, deadlines, they can all burn. I have a battle to fight, an onslaught to defend myself against, and a body to survive.
But here’s the kicker: I’m generally a sunny person. Not toxically positive, but cheerful. It’s unsettling to feel like I’ve been spiritually mugged in a dark alley of my own nervous system.
Summer’s Cruel Heat, Winter’s Damp Betrayal
Summer here hits 44° Celsius (that’s 111° Fahrenheit for my metric-challenged readers). That heat is its own private hell: it strangles your lungs, turns your brain to soup, and turns MS symptoms into a kind of demonic opera.
But winter? Oh, winter has its own weapons. Cold, wet air that drowns your lungs, drags bronchitis in like an uninvited guest. Sometimes even pneumonia.
Out of the frying pan, straight into the fucking fire.
But There’s a Silver Lining. Always.
Change is here. That counts. Even if it’s a shitstorm wrapped in fog. They say a change is as good as a holiday. Not sure who “they” are, but maybe they’ve been through something too.
Today, this is the best I can do: get through the drive. Hold Bugsy back from annihilating the car or me. Breathe through the fire in my limbs. And write it down, so tomorrow I don’t gaslight myself into thinking it wasn’t that bad.
If you’re in your own flare, of pain, grief, rage, consider this a hand squeezed in solidarity.
Hold on. Even feather-light resistance counts.
If this piece held your hand for a moment or made you feel a little less alone in your own firestorm, consider fueling my next journal entry with a warm cuppa. Bugsy and I run on caffeine and courage.
Editor’s Note This one’s for the tired ones. The ones still standing, barely, because they had to be. I wrote it for the part of me that still thinks asking for help is weakness, even when I know better. It’s not polished. It’s not pretty. But it’s real. For anyone who’s ever had to fight to find their people, this is for you.
These Weary Bones
oh these weary bones that rattle like a snake deceived by a mind that won’t shut up the motormouth spinning stories, dizzying the insides of my head.
I rose from nothing, like a loaf left too long in the oven punched, kneaded, left to burn.
I’m no damn island. more a battered village clinging to a cliffside. fingernails split. hands bloodied. still, holding on.
a stubborn mule clutching pride even as hands reach out. I know I’m not alone.
this world all rage and righteous rot. keep your petty poppycock step the fuck aside if all you bring is cruelty and showmanship.
no space left on this rock for exploding egos and fair-weather saints. I’ve bled too much to share ground with cowards.
The Comfort of a Clan
I’m tired. Not the “I stayed up too late” kind of tired. No, I’m talking about the kind of tired that lives in your bones. The kind that whispers, “you’re doing too much again,” even while you keep pushing. My MS flares love to remind me what happens when I don’t listen.
Still, I keep going. And honestly? I’m not even sure how.
But here’s one truth I know: I am incredibly lucky. I’ve got a clan. A real one. A village. A tribe. A group of humans who love me hard, hold me up, and never ask for anything in return but the truth. I think of the people who don’t have that, who face the grind alone, and my heart breaks a little.
Yes, I feel sorry for myself sometimes. I think that’s normal, especially when your body betrays you. But even then, I remind myself, I am one of the lucky ones. I don’t have to do this alone.
Well, except I often try to.
Because, truth be told, I am a stubborn old bag. Asking for help doesn’t come naturally to me. I’ve been fiercely independent for over 16 years. Before that? I was stuck in a situation where I had no choice but to rely on someone who resented every second of it. It nearly broke me. But I got out. With the help of my family and years of therapy, I found myself again.
So no, I don’t like asking for help. It reminds me of what it used to cost me. But these days, my body doesn’t give me the luxury of pride. And I’m learning, slowly, to trust that help doesn’t always come with strings.
For the first time, I’m in a relationship that feels like home. Not perfect. Not a rom-com. But real. Equal. Honest. Communication is the currency, not control. We walk beside each other, no one dragging the other along. It took me long enough to find this. But god, it was worth the wait.
Here’s something else I’ve learned: Surrounding yourself with the right people? It’s everything.
I’ve trimmed my circle right down in recent years. No room for the energy vampires, the performative friends, the ones who disappear when things get hard. I don’t need a crowd. I need a few solid souls who remind me who I am when I forget. Who challenge me, support me, and never let me shrink.
You don’t have to agree on everything, politics, religion, parenting styles, or pineapple on pizza. What matters is respect. Empathy. The ability to sit across from someone and say, “I don’t get it, but I’m here.”
Imagine a world where that was the norm instead of the exception. Imagine a culture built not on outrage and ego, but on kindness and curiosity.
Yeah, I know. Sounds like a pipe dream. But honestly? I think it starts with us. With our little villages. By refusing to let the world make us bitter. Choosing over and over to love louder than the noise.
It still takes a village. Maybe now more than ever.
And I’m holding onto mine with everything I’ve got.
A few nights ago, I dreamt my best friend stole my boyfriend—and to add insult to injury, everyone was mad at me for not being happy for them. Excuse me?? In what universe is that a reasonable emotional response? Apparently, in Dreamland, I’m the villain for having feelings. Love that for me.
Then last night I dreamt I was pregnant. I’m 48. My ovaries audibly laughed when I woke up. But in the dream, I was wearing my boyfriend’s graphic tees, proudly showing off my bump like some Pinterest-worthy mum-to-be. The subconscious is wild.
In real life, I’ve been having weird, sweat-inducing, doubled-over-in-agony pelvic pains and suspect it’s time to say goodbye to the IUD that’s been living rent-free in my uterus for a while now. I’ve been dreading having it removed. Not quite as bad as having it inserted, but still—hello!!! A little anaesthesia wouldn’t hurt.
I mentioned this to my Mother, and, bless her, she warned me to be careful I don’t fall pregnant. At 48… with cyst-infested ovaries? It would be an act of the divine. (SFX: angels singing)
Still, the dream left a strange warmth behind. I don’t have children—I couldn’t (unless you count the four-legged, fur-covered kind)—but that dream baby felt oddly real. Maybe it’s just hormones. Or gas. Or the fact that I became an aunt again recently, and my new niece is absolute perfection. I’d love to be more present in my nieces’ and nephews’ lives, but I live on the other side of the world. I suppose that makes me a digital aunty. A pixelated presence with a Wi-Fi connection and a whole lot of love.
It’s weird. And a little sad. Call me old-fashioned, but I want to hug the people I love. Not just double-tap their faces on a screen.
Speaking of hugs—Bugsy (my dog) prefers his affection delivered in flying leaps and enthusiastic face-licks. Not exactly subtle, but I get the message. Imagine if humans did that. Note to self: Get some tea tree face wash.
So yes, last weekend we stayed up talking till 3 am, laughing like teenagers, like there wasn’t a chronic illness or middle age looming in the background. Was it irresponsible? Definitely. Was it worth it? Absolutely. Sometimes, connection matters more than rest. (MS doesn’t care about my emotional growth. It wants naps. Now.) Still, sometimes the pain is worth the priceless joy of two souls connecting.
Which brings me to today: I am completely out of spoons. No cutlery left in the drawer. My battery is flat, my tank’s empty, the engine won’t even turn over. I had another one of those weird spells yesterday where I just… shut down. One minute I was upright, the next I was horizontal and unconscious—like a phone that forgot to warn you it’s on 1%. It’s happening more often. Still trying to figure out what it is.
I made a beautiful lunch disguised as breakfast. (Don’t come for me, I don’t eat before 11 am unless bribed.) Toasted seed loaf, smashed avo, egg, spinach, feta, and edible flowers—because I’m clearly in my edible flower era. They make the plate look happy. And honestly, if your food can’t spark a little joy, what even is the point?
Anyway, I’m rambling. That’s what happens when you’re sleep-deprived and slightly hormonal with a head full of dreams and a body full of meh. Someone, please bring me coffee. Or a hug. Or maybe just a soft place to nap where no one expects anything from me for at least 12 hours.
Let me just say this upfront: I’m not tired. I’m fatigued. And if you don’t know the difference, lucky you. Really.
Right now, I’m writing this from bed. Not in a “cozy Sunday morning with a latte and a little Netflix” kind of way. No. I’m in bed because my body has straight-up refused to participate in today. Multiple Sclerosis fatigue is not just tiredness; it’s full-body betrayal. It’s like your limbs have turned to concrete and your brain is wrapped in molasses and you’re supposed to keep going like everything’s fine. Spoiler: it’s not.
A doctor once explained it like this: if someone without a chronic illness wants to understand what MS fatigue feels like, they’d need to stay awake and upright for three days straight. Then try to function like a normal human. That’s the starting line.
The Daily Tradeoff: Do Something… or Everything Falls Apart
Lately, I’ve been doing too much. And when I push too hard, I pay. The interest rate on energy debt with MS is brutal. I need rest, like, non-negotiable, stop-the-world rest, but life doesn’t exactly come with a nap button.
I wish I were exaggerating when I say I need a midday nap just to function. But who the fuck has time for that? I’m not a toddler in daycare. I’m a woman with a life and deadlines and a cockroach infestation that’s slowly becoming a B-movie horror plot.
Oh Yeah, Let’s Talk About the Bugs
Because apparently fatigue and hunger weren’t enough, I’ve also got roaches. Big ones. The kind that have been around since the dinosaurs and act like they pay rent.
The foundation in my cottage shifted recently, which basically opened the gates of hell and invited every insect in the area to move in. Ants, roaches, you name it, they’re here. It’s a full-on wildlife convention here at Songbird Cottage. And I am not okay with it.
Last night, I was watching M*A*S*H in bed when Big Pappa Roach decided to take a stroll across my floor. Bugsy took one look, shrugged, and went back to sleep. Thanks for nothing, bro.
Love, Lattes, and Losing It
What I want more than anything right now is for my boyfriend to walk in with a cappuccino in one hand, that warm smile of his on his face, and just hold me for a minute. That kind of hug that smells like roasted coffee and promises you’re not in this alone. But no, he’s at work. And life doesn’t pause for nobody.
So I’ll get up. Slowly. I’ll do what I can. I’ll fight the roach war and do some cleaning. Bugsy will freak out over the mop and attack it. And honestly? I might give up halfway through and let him battle it while I lie back down. He’ll be proud of himself for protecting us, which will give his self-esteem a great boost.
Because this is the reality: MS fatigue isn’t lazy. It’s not optional. It’s not something you can just push through with a good attitude and positive vibes.
But still, I keep going, I try. Because I want to live. I want fruit. I want a clean house. I will not give up and I will conquer this world, one little itty bitty step at a time. And some days, just wanting is enough to get me moving. Kind of.
What about you? Ever felt like your body staged a coup and forgot to notify your plans?
