This morning, before I’d even opened my eyes, I knew. Not from a calendar reminder or a “you’re due for a flare-up” ping. Just the weight of my own body. Heavy. Cement-heavy. Fire-in-my-veins heavy.
Welcome to the delightful surprise party that is chronic illness. No RSVP needed. You just… wake up in it.
The Flare Days You Don’t See Coming
Some flares sneak up on me. Others kick the door down and announce themselves with full-body spasticity, shooting nerve shocks, and hands that feel like they’ve been beaten with hammers. Today it’s the latter.
My feet and calves are twitching like live wires, and my hands are stiff, aching, and protesting even this act of typing. Vision? Blurry. Pain? Electrical. Plans? Cancelled.
And here’s the kicker: I used to ignore this. I’d push through. Slam a Red Bull, down some coffee, and throw myself into work like I was invincible.
Spoiler: I’m not.
Before Chronic Illness, “Rest” Was an Afterthought
Rest used to mean feeling guilty. Lazy. Weak. I grew up in a culture of “hustle harder” and “push through the pain.” Rest was what you earned once everything else was done, except everything else was never done.
So I’d rest, sure. For twenty minutes. While scrolling. Or I’d lie in bed with my laptop, answering emails like a good little burnout-junkie.
Turns out, that’s not rest. That’s just horizontal productivity.
Now? Rest Is a Ritual
Rest is no longer a break; it’s a boundary. It’s a ceremony.
The bed is made, properly made. Soft, high-quality linen. No scratchy textures. My skin is too sensitive, and my nervous system too fried, for anything but comfort.
Sounds of nature fill the room. Crickets. Forests. Sometimes just silence, blessed and still.
Lavender floats through the air, either from a candle or a diffuser, because my brain needs cues that it’s safe to exhale.
Baths with Epsom salts when I can manage it. Lavender-infused again. Heat is magic. Fun fact: so is Lavender.
And always, always tea. Sometimes a fancy store-bought herbal one, sometimes a wild little blend of whatever’s in the fridge: fresh ginger, honey, lemon, mint, berries. I long for a proper teapot with a built-in infuser. I’ll get it one day, fingers crossed.
There was a moment, a real one, when I realised: rest is not a luxury. It’s not a nap. It’s not working from bed. It’s not multitasking with a heating pad on.
Rest is permission. Permission to shut off. To stop proving yourself. To not be available to everyone all the time.
I finally saw what my body was begging me for: clear boundaries. Not “I’ll just do this one last thing.” Not “It’s fine, I can take that call.” But a full switch-off, emotionally, physically, and mentally.
Friday to Monday. No clients. No guilt.
Just… recovery.
If My Body Could Speak…
It would say:
“You call this rest?! Give me real rest or I’ll force it out of you.”
And honestly? Fair.
Because my body has forced it out of me before. Through flares. Through burnout. Through collapse.
Rest Isn’t Weakness, It’s Wisdom
If you’re living with chronic illness, or even just carrying too much life in your bones, you don’t need permission to rest. But I’ll give it anyway:
Let your rest be lush. Let it be soft. Let it be sacred. Let it be enough.
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It feels like fire in my veins. That kind of pain. The pain that makes you shake not from fear but from sheer bodily revolt. Electric shocks snap through me like I’ve been rigged up to a sadistic little taser and someone’s got a trigger-happy finger. It’s Tuesday morning, and I’m trying to hold back tears while typing this, because even typing feels like a bloody expedition.
This latest MS flare kicked off just after midnight Sunday, that weird, ghostly hour when the world is silent and your body chooses to riot. My fingers are stiff; they don’t want to move. My thoughts are flickering—like a dodgy lightbulb in a horror film.
And then it rains.
Bugsy, The Windscreen Wiper Assassin
The irony is thick: the one day I am at my most broken, the sky follows suit. Not a gentle drizzle. No, today it’s an angry, theatrical downpour. Bugsy—my ride-or-die, neurotic rescue dog—decides the windscreen wipers are obviously murderers. Every time they swipe, he lunges at the dashboard like he’s in a high-stakes action film and sinks his teeth into the once-beautiful leather seats. We have to head back to our town today. When I’ve managed to gather the strength or energy, we’ll hit the winding farm roads, half-swallowed by floods. Note to self: get life jackets to keep in car. My hands will barely grip the steering wheel, thank fuck for power steering, and my muscles will spasm with each bump in the road. And this is Africa, we have nothing but bumps in the road.
In Afrikaans, we have a saying, “ek voel vere.” It literally means, “I feel feathers,” but what it actually translates to is: I don’t give a damn. Today, I voel vere for everything outside this pain. Bills, emails, deadlines, they can all burn. I have a battle to fight, an onslaught to defend myself against, and a body to survive.
But here’s the kicker: I’m generally a sunny person. Not toxically positive, but cheerful. It’s unsettling to feel like I’ve been spiritually mugged in a dark alley of my own nervous system.
Summer’s Cruel Heat, Winter’s Damp Betrayal
Summer here hits 44° Celsius (that’s 111° Fahrenheit for my metric-challenged readers). That heat is its own private hell: it strangles your lungs, turns your brain to soup, and turns MS symptoms into a kind of demonic opera.
But winter? Oh, winter has its own weapons. Cold, wet air that drowns your lungs, drags bronchitis in like an uninvited guest. Sometimes even pneumonia.
Out of the frying pan, straight into the fucking fire.
But There’s a Silver Lining. Always.
Change is here. That counts. Even if it’s a shitstorm wrapped in fog. They say a change is as good as a holiday. Not sure who “they” are, but maybe they’ve been through something too.
Today, this is the best I can do: get through the drive. Hold Bugsy back from annihilating the car or me. Breathe through the fire in my limbs. And write it down, so tomorrow I don’t gaslight myself into thinking it wasn’t that bad.
If you’re in your own flare, of pain, grief, rage, consider this a hand squeezed in solidarity.
Hold on. Even feather-light resistance counts.
If this piece held your hand for a moment or made you feel a little less alone in your own firestorm, consider fueling my next journal entry with a warm cuppa. Bugsy and I run on caffeine and courage.
It’s 2:47 a.m. and I’m scrolling through Instagram, watching strangers toast champagne in Santorini, cuddle golden retrievers, and post “raw” captions that somehow still feel filtered. I’m not sad, exactly. But I’m not okay, either. I’m lonely. And I know I’m not alone in that.
In a world where we can FaceTime across oceans and “like” a hundred photos before breakfast, why do so many of us feel so disconnected? The answer is messy, layered, and deeply human if we’re brave enough to look.
The Digital Age: More Screens, Fewer Souls
We were promised connection. Instead, we got curated highlight reels and dopamine loops. A 2025 Baylor University study found that both passive scrolling and active posting on social media were linked to increased feelings of loneliness over time. Even when we’re engaging, we’re often left feeling emptier than before.
It’s not just the quantity of our interactions that’s changed, it’s the quality. We’ve traded deep conversations for comment threads, shared silences for typing indicators. And in doing so, we’ve lost something vital.
The Health Toll: Loneliness as a Silent Epidemic
Loneliness isn’t just a feeling; it’s a health crisis. The U.S. Surgeon General has equated the health risks of chronic loneliness to smoking 15 cigarettes a day. It increases the risk of heart disease, stroke, dementia, and premature death.
Mental health suffers, too. Lonely individuals are more prone to depression, anxiety, and suicidal ideation. The emotional pain of isolation can be as real and as damaging as physical pain.
The Vicious Cycle: Social Media and Loneliness
It’s a cruel irony: we turn to social media to feel connected, but it often leaves us feeling more isolated. A longitudinal study among Chinese college students found a bidirectional relationship between loneliness and problematic social media use—each feeding into the other over time.
The more we scroll, the lonelier we feel. And the lonelier we feel, the more we scroll. Breaking this cycle requires conscious effort and, often, a reevaluation of our digital habits.
The Generational Divide: Gen Z and the Loneliness Surge
Gen Z, the first generation to grow up entirely in the digital age, is experiencing unprecedented levels of loneliness. A 2025 report revealed that one in four young Australians reports loneliness as a daily stressor. Social media, while offering avenues for connection, often exacerbates feelings of isolation among youth.
The constant exposure to others’ curated lives can lead to feelings of inadequacy and exclusion, further deepening the chasm of loneliness.
The Illusion of AI Companionship
In an attempt to address the loneliness epidemic, tech leaders like Mark Zuckerberg have proposed AI companions as a solution. While AI can offer temporary comfort, it cannot replace the depth and complexity of human relationships. Overreliance on AI risks diminishing the value of genuine human interaction and may lead society to neglect essential social infrastructure.
True connection requires vulnerability, empathy, and shared experiences—qualities that AI, no matter how advanced, cannot authentically replicate.
Reclaiming Connection: Steps Toward Healing
Addressing loneliness in the digital age requires intentional action:
Digital Detox: Set boundaries for screen time. Designate tech-free zones and times to foster real-world interactions.
Community Engagement: Participate in local events, volunteer, or join clubs to build meaningful relationships.
Mindful Technology Use: Use social media intentionally. Engage in content that uplifts and connects rather than isolates.
Seek Support: If loneliness becomes overwhelming, reach out to mental health professionals or support groups.
By taking these steps, we can begin to rebuild the social fabric that technology has, in some ways, unraveled.
A Personal Reflection
I remember a time when I felt truly connected—not through likes or comments, but through shared laughter and unfiltered conversations. It was messy, imperfect, and real. In our pursuit of digital perfection, we’ve lost sight of the beauty in imperfection.
Let’s choose to be present. To look up from our screens and into each other’s eyes. To embrace the awkward silences and the unfiltered moments. Because in those spaces, true connection thrives.
I was halfway through my master’s in architecture, you know, living on coffee and blind optimism, when the rheumatologist slapped the words “systemic lupus erythematosus” on my file. Cheers, doc. Overnight my wrists puffed up like angry balloons, and every drafting pen felt heavier than a pint of Guinness. Lecturers talked about taking time off, friends offered the usual “sure everything happens for a reason” guff. I nearly believed my career was headed for the bin.
Then one grim November night, rain lashing the windows, fever spiking so hard I was talking shite to the ceiling, I saw the shadows on the plaster twist into mad, gothic cathedrals. Proper haunted-house stuff. Half-delirious, I grabbed a sketchbook and scribbled the shapes: crooked arches, spiral staircases that went nowhere, angles that would give my old geometry teacher a heart attack. The pain blurred my lines, but it also kicked perfectionism out the door.
Weeks of bed rest turned into the best studio I never asked for. Between hot-water-bottle shifts and Netflix binges, I filled page after page with structures that bent, curved and tilted like bodies that refuse to behave. By the time I limped back to campus, I had a portfolio full of buildings that could actually cradle people with dodgy joints, light sensitivity, all that craic. My professors were gobsmacked, they called the work radical.
Fast-forward to now: clients hunt me down for offices with nooks to stretch stiff backs, galleries with railings you want to hug, studios lit so migraine brains don’t feel like they’re in a nightclub. Lupus still barges in uninvited, some mornings I’m drafting from bed, stylus propped against a feck-off stack of pillows, but it’s taught me architecture isn’t about rigid grids; it’s about sheltering messy, miraculous humans.
Yeah, illness nicks plenty, but it also leaves breadcrumbs to new ideas. Every dawn, joints creaking like old floorboards, I glance at those ceiling shadows and think: grand, let’s build something weird and kind today.
If you have a story to tell or a question for the team, email us at hello@kateandginger.com
Anyone with ADHD or OCD will tell you, overthinking isn’t some quirky personality trait; it’s a full-contact sport. My brain is like a hamster on a cocaine bender in a wheel made of existential dread. Once it gets spinning? Good luck stopping it.
I’ve overanalyzed texts, tone of voice, facial expressions, past convos, future convos, and whether or not the barista actually wished me a good day or was just being polite. If overthinking burned calories, I’d be shredded.
But because I like to function (and not spiral into a puddle of what-ifs every time I misread a text), I’ve cobbled together a little overthinking survival kit. Not foolproof. Not therapist-approved. But it’s kept me afloat.
1. Puzzle Games
Word puzzles. Moving blocks into tiny spaces. Anything that demands just enough brainpower to hold my attention without tipping into frustration. When I’m doing a puzzle, my mind finally has something useful to chew on instead of gnawing on my own self-esteem.
There’s something weirdly soothing about finding the right fit, solving the next word, and clicking the piece into place. It gives my brain the satisfying illusion of control and resolution, which is all it really wants.
2. The “Fuck It” Timer
This one’s weirdly effective. I set a timer for 20 minutes and give myself permission to obsess the hell out of whatever I’m spiralling about.
I go full doom mode. Google things I probably shouldn’t. Rant in my notes app. Make imaginary arguments in the shower.
And when the timer goes off? That’s it. My brain had its tantrum. Time to rejoin humanity.
3. Walking My Dog in Nature
It’s not just the fresh air or the trees. It’s the rhythm. The leash in my hand. My dog sniffing the same patch of grass like it’s a holy relic. It’s ordinary, grounding, and so gloriously not about me.
Sometimes we walk in silence. Sometimes I talk to him like he’s my therapist with four legs. Either way, being outside with him resets something in me. It reminds me I have a body, a world, a life beyond my noisy head. It’s one of the most grounding ADHD coping tools I have.
4. Writing It Out (Usually in Poem Form)
When the mental noise is too loud to ignore, I write. Not a to-do list or a journal entry. I write poems. It’s like turning the chaos into something beautiful, or at least something shaped.
The structure, the rhythm, the hunt for the right word; it all forces my brain into focus. By the time I’m done, whatever had its claws in me has usually loosened its grip. It’s how I calm an anxious mind when nothing else is working.
5. One Person Who Gets It
Not someone who will fix it. Not someone who will say “just let it go.” Just someone who will go, “Yep. That sucks. I do that too.”
Sometimes we don’t need a solution. We just need to not feel like a lone freak in a sea of normal.
None of this is magic. My brain still spirals. But now I don’t spiral alone. I have tools. I have touchstones. I have a way back.
So if your mind is a loud, relentless bastard sometimes too? Welcome. You’re not broken. You’re just thinking real hard in a world that rarely makes sense.
If you don’t have someone to vent to, I’ve set up a Facebook group for people to safely come and let off steam, share their stories, and talk to the ether without judgment. Join the Kate & Ginger Mental Health Circle on Facebook
