Today, I had a horrible experience in town — and sadly, it’s one that many people with invisible disabilities know all too well.
I parked in a disabled bay. I’m allowed to. I live with multiple sclerosis (MS), a chronic, degenerative illness that affects me every single day, even if you can’t see it.
As I was getting out of my car, a woman approached me and said, “You don’t get to park there.”
I calmly explained that I have MS.
She rolled her eyes. “Oh please, that doesn’t count,” she said.
When I showed her my valid disabled parking disc, she sneered and said, “You can buy those anywhere,” before waving me off like I was some kind of fraud. She didn’t stop there — she berated me in front of strangers, making sure I felt humiliated, belittled, and dismissed. And I think she was filming me, just to twist the knife a little deeper.
This is what public shaming looks like when you live with an invisible illness. This is the quiet cruelty that people don’t see — or choose not to.
Later that day, I went online to my support group, still shaken, still trying to ground myself. I shared what had happened — and the response was overwhelming. Hundreds of people replied. Not only had they been through similar encounters, but many admitted they now prepare for them. Mentally rehearsing what they’ll say. Keeping their documents close at hand. Some even avoid using accessible bays altogether to sidestep the confrontation.
Think about that for a second: people with real, diagnosed disabilities are bracing themselves to be challenged for using a parking spot designed for them.
Yes, we appreciate when others understand that disabled bays exist for a reason — but now it’s gone further. There’s a new layer of judgment: if your disability isn’t immediately obvious, you’re assumed to be lying. The burden of proof is dumped on the person already struggling.
MS is real. The fatigue, the spasms, the brain fog, the pain — it’s all real. And believe me, if I could trade my disabled badge for a healthy body and a regular parking spot, I would.
But here’s the thing: not all disabilities are visible. And just because someone “looks fine” doesn’t mean they aren’t struggling.
To that woman, and to anyone else who thinks they can play judge and jury in a parking lot: your ignorance isn’t just offensive — it’s dangerous. You’re not protecting the system; you’re making life harder for people already carrying more than you can imagine.
So the next time you see someone in a disabled bay who “doesn’t look disabled,” maybe consider this: your eyes aren’t qualified to diagnose anyone. And a little kindness costs you nothing.
Editor’s Note
I hesitated to share this — but the truth is, silence doesn’t protect us. Sharing these moments matters, because every time we speak up, we make it harder for ignorance to win. If you live with an invisible illness, know this: I see you. And if you don’t, I hope this helped you see us more clearly. Everyone deserves the right to move through the world with dignity — no explanations, no justifications.
Nasty old woman shouting and holding up her cellphone.
No one tells you how exhausting it is to be polite about being chronically ill.
No one warns you that one of the hardest parts won’t be the symptoms — it’ll be the explaining, the justifying, the pretending-you’re-fine smile you glue to your face at doctor’s offices, family dinners, and the school gate.
Living with chronic illness doesn’t look like a movie montage. It looks like the same unwashed hair three days in a row. It looks like forgetting words mid-sentence. It looks like cancelling — again — and hating yourself for it.
That Chronic Fatigue? It’s Not Tired. It’s Poisoned.
Chronic fatigue isn’t just being tired. It’s body-in-concrete exhaustion that makes brushing your teeth feel like a marathon. It’s lying in bed hurting from doing nothing. And still, you explain it like you’re “just run down” because people don’t understand what this kind of fatigue actually is. Experts say that for the average person to understand what chronic fatigue feels like, they would need to stay awake for three days straight and then attempt to continue with life as though nothing is wrong.
You Become an Expert at Smiling Through Chronic Pain
You learn to say “I’m fine” while your joints are on fire and your head feels like it’s splitting in two. Because being visibly sick makes people uncomfortable. So, like many living with an invisible illness, you become a master at hiding your truth.
You Feel Guilty All the Time
Guilty for being ill. Guilty for cancelling. Guilty for being “negative.” Guilt becomes your shadow — especially in a world that expects constant productivity. And chronic illness doesn’t come with sick leave for your emotions. It certainly doesn’t give you sick leave for being sick.
You Lose Friends — and You Blame Yourself
Some people slowly drift when you stop being “fun.” Others disappear completely the moment you need support. You start to wonder if you’re just too much — when really, they just weren’t equipped to stay.
Your Body Becomes a Full-Time Job
Living with chronic illness means appointments, test results, meds, insurance, symptom tracking. You become your own medical manager. And half the time, doctors still shrug and say, “We don’t really know.” Ironically, chronically ill people develop skills that could run circles around the top CEOs; we just don’t have the bodies to be able to do the job.
You Start to Doubt Yourself
When your labs come back “normal,” when a doctor dismisses your symptoms, when people say “but you look great” — you begin to gaslight yourself. You wonder if it’s all in your head. This is the quiet cruelty of misunderstood chronic illness.
You Become Fierce in Ways You Never Expected
You stop people-pleasing. Believe me. This is one of the first changes you’ll experience. You learn how to say no, how to rest, how to speak up. Your survival depends on this. Chronic illness teaches you how to be soft and strong — even on the days you’re barely holding it together.
You’re Not Weak — You’re Living a Life Most People Couldn’t Handle
Being chronically ill every day is hard. It’s unseen, often misunderstood, and deeply personal. But you’re not alone. There’s nothing wrong with you. And you are more than your diagnosis.
You’re just learning how to carry the weight of your reality — and that’s a strength no one talks about enough.
